For more information about Spina Bifida, check out some of the web sites below by clicking on the icon.
Spina Bifida Association
of America |
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National Institute
of Neurological Disorders and Stroke |
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Association for Spina
Bifida and Hydrocephalus |
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Spina Bifida Research Resource (SBRR)
The Spina Bifida Research Resource (SBRR) is a project, funded by the National Institutes of Health, to study the causes of spina bifida and anencephaly. To succeed, this project requires a partnership between scientists and families that are affected by these conditions. Families that join the SBRR are asked to complete an interview and to provide blood or saliva samples for genetic studies. No travel is required and there are no costs associated with joining the SBRR. Visit www.sbrr.info for more information.
Advice on the treatment or care of an individual patient should be obtained through consultation with a physician who has examined that patient or is familiar with that patient’s medical history. Persons with Spina Bifida are urged to discuss their particular symptoms and situations with their personal physician.
Notice: The information provided here is for informational, educational and entertainment purposes only. It is not intended to replace, and should not be interpreted or relied upon as, medical or professional advice. Your use of this site means that you agree to the terms and conditions detailed in our disclaimer.
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