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Dear Friends of the Spina Bifida Association of Northeastern NY (SBA of NENY):
SBA of NENY is working hard, largely through the efforts of a group of dedicated volunteers and limited staff, to address the needs of those affected by Spina Bifida and to educate our community about prevention. Through our organization, we:
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Reach out to new families while their child is still in the hospital
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Conduct support groups for young children, teens and parents
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Organize social activities as a fun way to meet others with Spina Bifida
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Provide information and referral services that are a vital link to better health outcomes for people living with Spina Bifida
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Educate young women of childbearing age about the need to take folic acid to decrease the incidence of neural tube defects
The Power behind Your Donation
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$25 will provide resource information to parents with newborns who have Spina Bifida.
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$75 will provide outreach and information resources to individuals new to our chapter.
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$150 will provide one “Young Families” program.
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$400 will provide one edition of News to Use, the quarterly newsletter of SBA of NENY.
Donate to SBA of NENY!
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Mail your contribution of $25, $75, $150, $400, or any other amount in the enclosed envelope.
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Donate online using your credit card through the “firstgiving” link. Simply go to our website at www.sbaalbany.org and find the link on the first page.
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Does your company have a matching gift program? Double your contribution by registering the gift you make today. Ask your human resources office for information.
Thank you for your commitment to people living with Spina Bifida.
Sincerely
Barbara Devore, Chapter Chair |
Jim Gallagher, Fundraising Chairperson |
Karen Wentworth, Executive Director |
The Spina Bifida Association of Northeastern New York is a tax exempt 501 (c)(3) organization, and as such, donations to it may be tax deductible. We recommend you contact your tax advisor regarding deductibility.
"Spend 60 seconds with the Mitchum family -- learn what you should do about prevention of Spina Bifida and neural tube birth defects."
Real Stories
The Real Stories collection is inspiring stories of people living each day with Spina Bifida. These heartwarming accounts of their daily struggles and triumphs serve as lessons of love, encouragement, and hope to all.
The Real Stories video collection offers hope that anything is possible for those with Spina Bifida. Watch magnificent triumphs in everyday lives.
Abigail Branson Not Limited by Spina Bifida
Tatyana McFadden (1)
Tatyana McFadden (2)
The Spina Bifida Association of Northeastern New York is a non-profit, tax-exempt organization developed and staffed primarily by parents and friends volunteering their time and energies. We are committed to helping people with Spina Bifida develop to their fullest potential. The chapter provides support, information, education, recreation, and advocacy for individuals with Spina Bifida, their families, and friends
Some of the programs the chapter offers include Welcome Baby, Lending Library, Equipment Loan, Support Groups, and Financial Scholarships. In addition, the Chapter has a public education program entitled “Challenges: Understanding People Who Are Differently-Abled” designed to raise awareness in the general public for people who are disabled.
Chapter meetings are held approximately four times per year. Guest speakers address a variety of topics relating to Spina Bifida including medical, educational, research, social, and recreational concerns. People with Spina Bifida, their families and friends are welcome to attend.
The Spina Bifida Association of Northeastern New York is committed to helping people with Spina Bifida develop to their fullest potential. The chapter provides support, information, education, recreation, and advocacy for individuals with Spina Bifida, their families, and friends.
Advice on the treatment or care of an individual patient should be obtained through consultation with a physician who has examined that patient or is familiar with that patient’s medical history. Persons with Spina Bifida are urged to discuss their particular symptoms and situations with their personal physician.
Notice: The information provided here is for informational, educational and entertainment purposes only. It is not intended to replace, and should not be interpreted or relied upon as, medical or professional advice. Your use of this site means that you agree to the terms and conditions detailed in our disclaimer.
Please contact us with any questions or comments you may have about this Web site,Spina Bifida Association of Northeastern New York. Your questions or comments will be forwarded to the appropriate persons to answer or provide assistance.
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